Eye problems

Question from a member: I had my eyes tested because my vision keeps going funny but nothing was found. Do any of your members get floaty things in front of their eyes please? If so can they suggest anything that may help?

• Mine is more of a blurring and it seems to be present more often than not now.

   
• I get blurred vision alot. the floaty things more so if i look at bright lights. Have you heard of scotopic sensitivity (Irlens syndrome) ? I get blotches in my vision when I look at some things, especially light walls in bright lit rooms etc. You may need to consider tinted lenses. http://www.irlenclinic.com.au/page.php?id=11

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• Many of us with Fibro have light sensitivity, so it may just be another symptom Im afraid to say :(

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•  During the evenings mine gets particularly blurry or when I'm in a flare. I also see strange pulsating stars at time but have seen an opthalmic consultant and apart from now needing reading glasses as well as distance he can't find anything else wrong with my eyes, so we are just putting it down to the fibro'
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• My eyes go blurry, I get floaties, and they ache. Sometimes eye drops help, but not alot. I sometimes wonder if a nerve is being pinched? Or if its just another weird thing I just have to get used to...

   
•  I have floaters and weird wavy lines in my vision. I have to go get my Eritrea checked.

   
• Lmao eyes not Eritrea

   
• My eyes always hurt feel tired do hav blurry vision sometimes and sensitive to light xx

   
• Gotta love auto correct

   
• yep its all down to th dreaded 'F' word or cfs, oh the joys x

   
• I too suffer with this n very dry eyes also I find eye wash relieves it for a while xxx

   
•  same as the above Im afraid, optician says eyes are ok apart from age deterioration and its just something I have to get used to. I do where sunglasses a lot and I also buy sunglasses with a reading lens in them from ebay xx

   
• depends...you can have loose fibers in your eyes that look like threads, but, the eye doctor should be able to see those. Now, if you are having a migraine and you get the flashy, half-moon sparkles that start at the center of your eye and last about 20 minutes because it gets bigger and bigger...that is a sign that a migraine is coming. When I get those, I go take my relpax because I have pain after those floaties pass...also, people with fibro are light sensitive...and yes, blurred vision happens with me. Hope this helped.

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• Did you tell the doctor about the floaties? They are normal. I have them all the time. I've had them for many, many years. I had them well before being diagnosed with fibromyalgia or even shown signs or symptoms of it.

   
• I forget what they're called. And you can even google them and see what that says about them

   
• My dr said you need to rest your eyes when they appear. He treats many fibro patients and said this seems to be the concensus, close your eyes for no less than 5 minutes, more if possible.

   
• I constantly have problems with my eyes and nothing is ever found. I have floaters, blurred vision due to dry eyes?, sometimes wearing my glasses helps and other days wearing my glasses makes my vision worse. Can't seem to find any rhyme or reason why some days my vision seems okay and other days I have problems focusing and reading, etc. When I do have problems I just rest in a dark room, close my eyes and rest. This seems to help. I have been diagnosed with fibro. back in 1998 and probably had it before then but was not diagnosed. I have other health problems to deal with but with fibro, it is so unpredictable and this is what makes it so difficult to deal with. Good luck and take care.

   
• yes i get the looking through a koliediscope u know wot i mean i get all swhirling lights around objects and t.v. i also had a count 50 for glacoma but thats like my mum and dad and the family is myopic and my mum and 2 sisters have fibro lots to thank my family for lol

   
• p.s. anyone liveing in south london ?

   
• yes my vision has gotten worse since having fibro

   
•  Its a symptom of the fibro. Its a build up of something behind ur eye. I can't rememer what my dr called it. Haven't found any way to stop them. Mine kinda look like little glow worms. My eyes r getting worse and i have to wear glasses.

   
• I concur with Cindy and would like to add that the drugs for F.M.S. also increase these symptoms.

   
•  Yes

   
• I get blurred vision and aching eyes.

   
•  I get all the above .....but also see double ...my eyes feel like they've got stuck looking at my nose ...but they've not actually moved ...it's quite scarry ...anyone else have this problem??...

Stress

Question from a member: please could you ask members if stress makes them exhausted ? If i am stressed beyond a mild level my whole self wants to shut down!"

• Hard to tell for me to be honest, I am always ready for bed so ?(i Also have sleep apnea) I guess the answer would be yes as stress makes most people tired?
• any stress be it emotional or physical (ex. head cold) will wear my body down to the point where all I can do is lay in my bed.
• Yes it will ,and increase your symptoms your body will shut down so you can cope. Natures way.
• Yep, stress and loads, and loads of pain makes me extreamly tierd.....
• Yes very much so!!!!!
• Yes - definitely!
• Very much so!
•  Yes . !!!
• Oh yes
• Yes defo.
• My mom has sleepy spells when she over does or is stressed out. She gets really tired and has to go to sleep very soon. She may sleep a couple hours or all day/night long. You can wake her up but most of the time she is incoherent.
• Stress is fibro's worst enemy! Nothing makes me hurt more or brings on more overall pain than stress.
  
  

  • When I get stressed I definately get really exhausted and dont sleep properly (even worse than normal)

     
  •  Stress complicates everything!

     
  • I meant to add that when I am stressed my fibro fog gets worse. Very frustrating.

     
  • without a doubt :(

     
  • Yes...stress wipes me out...knocks me for six....I try to avoid as much stress as possible....don't read newspapers or watch the news anymore either

     
  • Stress plays a big part in it. If u get stressed its better to remove yourself from ot so you don't get so sick.

     
  • yes stress is horrible for fibro you have to learn to seperate the things you can't handle from the things we can but as we all know its very hard to do

Feet

Question from a member: "What problems are people having with there feet? My heel and under my foot are in agony when I put them down, top of my foot is tight and my 3 middle toes keep going numb or boiling hot and in excrutiating pain to touch. my skin peels off in enclosed shoes?"

• i get nerve pains in my toes and legs! really painfull!

  
  
• My feet go numb and when I walk it feels like the bottom of my feet are ripping.

   
• The heel is a real hotspot for my man... he likes me to grasp it will my full hand and squeeze, then I'll work my way up his tendon with massage, temporary relief at best :(

   
• If it is more so when your feet are cold, it could be vasospasms.

   
• I have similar problems. My high heels have gone for good! :(

   
• I have severely cracked and dry heels. Fungal nail infections and athletes foot..I can't seem to get rid of any of it. I used to have lovely soft feet..

   
•  I have pain in toes and feet and my feet are cold and turn purple,i have raynauds.

   
•  i hav probz to my nails turn blue my feet ar painful to walk on weak ankles and get severly cold havnt got any advice bt a warm bath for aches or a bowl of warm/hot water and soak them helps x

   
•  i get funny colour changes to and they swell

  
  
• Heels and the tops of my feet are two of the most sensative spots!!! Knees and elbows next most painful... ankles, elbow and wrists swell.

   
• That first comment sounds just like my feet only I don't have the peeling skin. But I do have peeling on my thumbs though !

   
• It is possible that people diagnosed with fibromyalgia have infections that are compounding their illness. One of those being Borrelia (Lyme Disease). Lyme Disease can be and is often accompanied by co infections and one of those is Bartonella. The symptoms described in the question are known to be associated with Bartonella. It is worth looking it up and trying to get tested for it, either on the NHS (which is unlikely) or privately. Please stay open minded about your diagnoses, until the research is properly done into these illnesses, we don't truly know what we're dealing with. But one thing is for sure, time and time again the researchers are seeing patients with either or both, viral and bacterial components to their disease. ♥

Night Sweats

Question from a member: "can you ask your members if any of them suffer night sweats really badly please? I've been getting them for some time but I'm too young for menopause, help!"

• yes- since I was 11 and I'm 34 now. Get hormones tested just to see if there is anything off balance otherwise try buying a chillow or having a fan on constant at night.

   
• YES !!! Fibro can affect our bodies ability to regulate temperature. I get night sweats almost every night. Sometimes just because of the fibro, other times its the vivid dreams that cause them, but I struggle day and night to control my body temp. (Dunno if the dreams are caused by the meds or my freaky mind xx)

   
• I do. Pretty sure that I'm not going through menopause, either. ;-) It seems like it has become more common since I hit my early 30s. I am 41 now...

   
• Also, as Anna mentioned, try a chillow. you can get them just for your pillow or bigger ones to lie on. Cooling pads or chill pillows they are called. Dunno how they actually work but they stay cold and absorb your heat. Able world sell them, but im sure there are other stores and online sites that have them as well.

   
• I have sweats all day long and I am too embarrassed to go out. If anyone can think of anything that would help me. Please advise x

   
• Yes me too I use my hot water bottle filled with cold water ,it also triggers my legs to spasm :0(

   
• People with fibro tend to be sensitive to endocrine disrupters. If you haven't already, get your thyroid (T3 & T4) as well as your hormone balance checked. It could be caused by some imbalance. Hormones need to be check at a specific time for women. Best to find a Naturopath DR. Unless you can find a very good traditional dr, most just don't get it or know how to treat hormones properly. Also food sensitivities can cause a problem, such as Gluten. If you eat something you are sensitive close to bedtime it seems to make the night sweats and dreams worse.

  
  
• I often have to get up and change bedding and shower during the night. Feel sorry for hubby with me sweating all over him !

   
• I often have to get up and change bedding and shower during the night. Feel sorry for hubby with me sweating all over him !

   
• Also.....you may think you're too young for the menopause but mine started when I was in my 30's and since thats under control my night sweats have decreased :)

   
• I get them bad especially if I miss a dose of meds. I'm a bit jealous of everyone who dreams. I haven't had dreams in 3 years. I don't reach deep sleep at all. I can still hear everything going on around me while I'm sleeping. It's quite strange. Does anybody else have this problem?

   
• double check your meds for side effects also

   
• All day and all night on and off! :( I'v had fms for more than 30 yrs! :(

   
• I do it was making me think i am crazy

   
• yes i get them really bad.

   
• This (in my opinion) is why we should support the Fibroduck research plans and do some serious fundraising. I was told by one of the worlds leading Virologists that night sweats are a clear sign of virus. It's the autonomic system that is failing badly but we need to get to the reason why. What is the cause? Rather than just masking symptoms all the time. ♥