Complete the sentence: the one thing I hate about hospitals is...

*The florescent lighting I have lupus I react to them.

*There isn't one thing. I hate everything, refuse to go in on my own!

*The continual blood draws and the fact that they wake you up to see if you need anything to help you sleep.

*Ignorance about Fibromyalgia

*All of the above and more.

*The way some health care professionals assume that I must be stupid (I'm overweight and dyslexic, as well as having FM) and that they are so much more holier than thou!
It would be nice to be a person who is listened to.

*I use to work in one, and now I don't like going to the hospital...even to visit...I have to make myself.

*The deliberate under staffing. It was bad when I was working, and has gotten worse since. Not even the best, most compassionate, well-informed nurse can adequately care for patients when administration keeps increasing the patient-nurse ratio! I'm extremely grateful to have gotten out of hospital nursing, even if it was ME/CFS/FMS that necessitated it.

*The smell.

*All the staff coming in with their perfume, powders, and laundry scents all over them.

*The germs you can catch that can kill us. When I had my last Stroke the A&E Doc said I was safer at home

*When you tell them you have Fibro and they let a person new at starting IV's practice on you! I know IV's hurt everyone, but if you have fibro and they have to poke you like three times it is unreal!
My mum has told off more than one person for this! It's usually "Go get someone who knows what they are doing!"

*The smell

*I appreciate staff are under the pump with lack of funding, etc. But developing good listening skills would make staff/patient relationships work so much more smoothly.

*Everything.

*Being told it's all in my head.

*Everything that everyone has said. I would love to meet a professional at the hospital that truly understood what we go through. gentle hugs everyone.

*They never let you get a good night's sleep!

*The length of time they make you wait to see a doctor to get help.

*They never tell you what's going on "We don't know"

*People have been mostly nice to me. I just don't think they know what to do about ME/Fibro. I think they do what they can which is very little to be honest.

*Their smell.

*Unanswered questions but doctors who don't have a clue and can't be bothered to find out either.

*Also when you go in there with any problem at all its immediately my Fibro ME or hyperlaxity! There is more to me than that!

*The food and boredom unless you get in a ward with some yappy people like myself.

*Doctors who aren't educated, and/or don't believe or listen to the patient - YES it IS a real disease, NO I'm NOT faking or looking for drugs, YES I KNOW.


*what works best for my body after going through this hundreds of times over the past 15 years!

*I like them, good drugs, just can't sleep well in them usually. I had a great experience last May when they took a tumour and two ribs out.
My stay was in ICU, and then step down ICU. I was kept VERY comfortable. The food in Step down ICU wasn't good though.
I had NO Fibro pain for 2 weeks. because of the morphine they gave me there and to take home.

*Waiting!

*Everything?

*The smell. It reminds me of visiting my mother when she was dying.

*Being treated like a second class citizen because my illnesses are silent and invisible.

*Everything! YUK!

*All of the above, plus being stuck in bed and not having my own stuff around me, and no furbabies on the bed with me!

*Waiting.

*They wake me up to ask me if I need anything to help with sleep.

*Taking blood and sarcastic doctors.

*The dust and dirt.

*Having to deal with Patientline if you want to watch tv!

*They are all like cattle markets, or is that just me?

*The waiting.

*I honestly wish I were well enough to still work. OMHS would then have at least one RN who believed in and generally understood ME/CFS/FMS! As it is, I dread the thought of ever having to go there as a patient-I know, from the other side of the equation, how clueless nurses and doctors there tend to be.

*Sick people are there! I know we go there to get better but.

*Being there.

*I honestly love it when they give you pain medication and the doctor never comes in while someone is visiting.
The Doctor comes late at night or before the sun comes up and you are too out of it to remember what they said. Hello I have Fibro Fog!

*Doctors who think they know everything and know nothing!

*Doctors in disciplines unrelated to Fibro/CFS who are insistent that nothing they want to do - no tests, no treatments - could possibly have an effect on the Fibro/CFS because the conditions are unrelated. Well, duh!
Oh, and the endless attempts to educate medical staff about what Fibromyalgia is, when you're too ill to speak.

Consultants

Do you ever get that feeling, because we attend so many hospital appointments, that when sat in front of a consultant and asked how they can help, you can't remember what it was you were referred for in the first place?

*oh yes. it's the when what started I have problem's with.

*LOL Yes, that would be me! I usually have to call the day before my appointments to find out what time they are. I even write down times and dates in 3 different places so I would remember!

*Yep all the time.I saw my GP last week and I had to take a piece of paper with me to remind me why I was there!

*I have never had a hospital appointment relating to Fibro. Just physiotherapy. I'm still waiting for my rheumatologist appointment.

*Ha, you have to get to the hospital in the first place! I went years ago to see a rheumatologist had blood tests, because nothing ever shows in my blood, (apart from inflammation, despite the fact I take anti-inflammatory medication, but never thought about that then) I was discharged after six months, and I get little or no support from my GP surgery, just keep taking the tablets, despite being in pain 24/7. Is anyone else treated like this?

*YES

*YES ME TOO! when they say how are you? I want to scream at them. Although my GP is lovely and sympathetic too!

*It's when they say...now, what can I do for you?

*My lovely rheumatologist patted me on the hand and said "Now I know how you ladies like to worry about things like MS but I assure you there's nothing wrong so maybe now you know that it will all go away" And POOF!!! as if by magic it did! Or actually, no, that last parts not true!

*I've been laughed at by consultants

*Yes, I have to write everything down!! But then I need to remember to bring the paper!

*I write every pain and ache down in a diary to show the consultant. It keeps me calm as I have a habit of waking in the night and worrying that they wont believe me. Unfortunately when I went for my appointment on Monday I forgot to take the diary with me!

*yes sometimes they say " and what can we do for you today? and I have absolutely no idea !!!

*I quite often draw a blank while I'm there,and when I get home I think oh crap I wanted to tell him this,this and this..Brain fog!

*Mine is no help at all no backing had to fight myself for dla and he was no support and still in the hospital were good but now I'm discharged so dreading next DLA application as I no he wont back me and I have no consultant or physio to back me this time. I'm on so many tablets too what does anyone else take?

*I have walked into the hospital and forgotten which department I am supposed to be going to (as have been to most!) But for consultant and GP appts I always write a list! Just recently I have taken to typing everything down and taking that in with me for the consultant - updated meds list and new symptoms. I even have a typewritten medical history for when I have to go to A&E - much easier than trying to remember how many surgeries I have had!

*no sorry. I just get sick of Dr. after dr. appts. None of them will ever understand.

*Consultant? what's one of those? I haven't seen one since being diagnosed 10 years ago! My GP puts every thing down to Fibro and tells me to keep up the meds! I feel like I have been thrown on the scrap heap! I do feel lonely in this as I have no idea of new meds etc. My GP often rushes me so end up forgetting what I wanted him for. I hurt my coccyx after falling down stairs 3 months ago, its agony but he just said " its the fibro ". My feet hurt all the time too. I put all doc appts on my phone with reminder set.

*hell yeh, I don't even know if I really exist.

*I feel that every day! I feel like I am losing my mind! I have been wanting a duck, and have I gotten 1 yet? NOOOOOOOOOOOOOOOOOOO I keep forgetting *TEARS*
I wanted the neck wrap to help with my neck and shoulder pain, it was on sale until Sunday. I remembered it on MONDAY! I HATE FIBRO FOG! I HATE FIBRO PERIOD!

*Can someone tell me if I can still get the free duck and pay for postage, or did I miss that too? UGH!!!


*OK I guess I had my self pity 4 the day, sorry folks! I apologize to all!

*ALL THE TIME!

*I keep a notebook in my bag with appointment lists- who, when, where, what did we do?, what did they prescribe?, how do I take it? All the SSDD crap that has become part of life.

*what a great idea and yes I went through the SSD several years ago and it pays to be able to look back at dates times ect. The more info you have the better, even if they do not ask.

*Every time I say I keep forgetting things , or I forget what I am saying half way through , everyone (without FM ) say oh yes I do that . Nobody seems to understand that it is Fibro. Why wont they understand me !!! I am so fed up with this rotten FM.

*yes you can get the duckie. go to the main site which you can get to from the info page here. fibroduck.com

you are also allowed to vent and be scared. that is what we are all here for. (I actually typed hear for---after I corrected myself I realized that it really could be HEAR with our listening ears :)

*my old gp would tell me it is just another symptom of fibro. tried to send me a pain clinic when I just asked if there was something between advil/ib 800mg and demerol. just told me we don't really deal with pain.

Then one time I had to see one of the nurse practitioners. I mentioned that there are times when I had to try to figure out what body part was really hurting. my eyes were tearing from pain but I didn't know which one was hurting.

she couldn't believe that that was possible and treated me as though I had 5 heads and that I didn't know what was happening to my own body. she really ticked me off. I made sure that I NEVER saw her again. I did have to have one of my kids have to see her once or twice after that. I left that practice because I always kept being pushed off to one of the nurse practitioners.

*Correct my mind goes blank hugs.

*((((hugs))))) the duckie will be free as long as we can make him. C'mon and join in xxx

*I took a list to an appointment in December and didn't get the chance to go through it!

*Who and where am I again?!