Question from a member: Has anyone tried Topirimate and how did they find it?

*Never heard of it, what is it?

*no idea of what it is, never heard of it!

*what is it ?

*I just found this via google, I'd never heard of it either
Topiramate

*It's Topamax and yes I have tried it been on and off of it for several years I recently got off it cause it was making my migraines worse instead of helping plus it made me forget more stuff and I already have fibro fog

*If it is topamax, talk about brain fog! its a killer on the memory cells. I quit taking it after 3 months, did not like feeling like a zombie.

*Toprimate/Topamax is an anti-convulsant. I tried it for migraines and it worked. It can cause some unpleasant side-effects.

*I love it! I was put on it for migraines and it initially helped them, but hasn't been helping them lately. For me, it helps with so many other problems. It may be making my fog worse, but I'm not sure. I don't really have any of the negative side effects people complain about, and most of them can be managed with vitamins/supplements.

*I have had clients on that stuff, cruel, cruel, steer clear if you can. That is the reason I will not take many things, I looked after people on them and saw the day to day side effects that were seen as behavioural.

*for me, it's helped a TON with the pain!

* Many people on my group have had it for migraine. As above said it does have some VERY unpleasant S/E

*One lady I know was diagnosed Bi poplar, it was the Topomax.

*I've been on it for years for migraines - helps tremendously with nausea/vomiting, in fact, I have none really with migraines now - however, I still have migraines, just not as severe. It is *horrible* for your brain. I've gone back to half dose at times and it seems my memory does better, but then the headaches are worse over the long run.
But right now the loss of memory is so disturbing that I'm considering going off and finding another way of dealing with the migraines, since I still get them anyway.

*is it topramax or topirimate?

*no, since I knew I had fibro for years and now my doctor agrees, she wants to wean me off Effexor ad try Cymbalta. I am in a lot of stress right now and she wants me to wait to wear off Effexor

*Topomax IS Topiramate. Topomax is the brand name, topiramate is the drug name.
I don't know that I've been on topiramate for my fibro, but I have taken it for my migraines, and it worked well, other than the obnoxious tingling (neuropathy) in my fingers and feet.

*My tingling is usually better with it, it gets worse (like all the s/e for me) when the dose is increased, then goes away within a week. I've read if you're put on it and the wrong section of your brain is the problem your more likely to have s/e.

*When my doc put me on it, he told me it would help with my pain. That's what actually led me to look into fibro. It's one of the few pain conditions it's actually thought to help!

*We discuss migraine with FMS on our group. There are people there who have their own Topomax stories to tell.
Read here

*I have been on Topamax for a while for icepick headaches. I had initial numbness in feet, knees and face which lasted up to a year, but it was worth it for the relief I was getting. However the icepicks have been breaking through again so I've had the dose increased and the numbness/tingling is back with a vengeance. Can't comment on brain fog as I've had that for years anyway.

*I have bene on Topamax since 2000-0001 for migraines which it has helped. But once I was diagnosed with FMS, I was told this was also known to help with the pain for fibro. It helps me to not take pain meds.

*I take Guaifenisen to hlep with my Fibroch pains. Makes life more bearable.

*I have been on it for years - it has kept the migraines from breaking through as often. I used to get migraines pretty much weekly and now it is more like one every six weeks or so that I get one so bad I miss work - I think that is worth taking it twice a day.

*I was on it and it helped with the pain but it affected my thoughts and made my memory even worse! Some doctors call it dopomax,instead of the real name topomax!

*It was my question. my doc has suggested it for fibro (and she says it will also help with weight loss). I am scared to start something that might have bad side effects.

*My sister was put on it to help with weight gain caused by Seroxat and she had a TERRIBLE time on it. Not only did it not help weight gain or migraines particularly it made her really anxious. Well, anything that's supposed to reduce weight is going to have some sort of amphetamine-type effects.
Steer clear if you suffer with anxiety. The psychiatrist who prescribed her denied that it could cause such a problem

*I am on topiramate for my fibromyalgia constant migraines it knocks them down a notch, about 20% I have been on it about a year and a half with no side effects that I know of.
I have constant migraine with sickness, sensitivity to light, sound and smell. The migraine doesn't go away its been there constantly for almost three years.

*No sorry.

*No sorry I use Pregablin which I believe is along the same lines. Boy do I know it if I accidentally miss one tablet!

*I take topiromate for Intracranial Hypotention. I haven't noticed any side effects to it but it does not help with any fibro pain. Fibro fog does seem to vary more though as it can last longer now. Maybe that is a side effect.

*does help with pain, esp neuropathic pain in hands and feet.
I take extra when get trigeminal neuralgia flare and it makes a big difference. Some problem "losing words" but don't know if due to med or fibro fog.
It does help with headaches, FMS headaches or other, not migraine.

In total, how many tablets do you take on any given day?

*16

*Close to 30

*At least 6 a day. It goes up if I take anything for the pain.

*18 and a big brandy for toothache today!

*3

*8 minimum.

*2

*It's 25+ lost count round then ran out of fingers.

*Including vitamins too many to count. Meds only 14.

*Was up to 23 but have given up!

*14 minimum.

*Depends on how much pain I'm in. 2 that I have to take every day regardless (thankfully they're small as I have trouble swallowing) and up to 12 if I'm in a lot of pain!

*used to be loads but now 1 a day, which I've just remembered I have forgot to take today, once a week it 4 then twice its 3

*I used to take between five to six a day but I had to cut down as I found that I was immune to them.

*I was up 2 30, but i dont see the point, now im down 2 12 just 500grams paracetamol and 400 grams ibuprofen every 4hrs.

*22 on a good day

*36

*30 tablets, which includes all meds, pain killers, vitamins etc.

*Wow! Is this all for the pain of fibromyalgia or are some of the pills for CFIDS as well? I only take synthroid. I'm afraid to take lots of meds because I have reacted badly in the past.

*On a good day 13, otherwise I have to take co-codamol on top.

*Way too many, I am scared to count them. I am trying HARD to get off a lot of them. I have had GREAT success by going to a wonderful Chiropractor and he is making adjustments to my neck and back.
Check out the internet regarding the "atlas" in your neck, the upper most movable bone in your neck, it protects your brain stem but it also has over 7 Trillion nerves running through it! My pain level is so much lower since I have been going to him.

*24 but does go up during hay fever season, hate taking them, but if I stopped I know I'd be a puddle of water on the floor.

*Would love to know what kind of "tablets" people are taking, seems I've tried everything out there, but I'm always wondering if some new combination might just be the ticket.

*you have to be careful of the herbs or natural stuff though. I have been told that they can react with certain meds.

*27

*30 if I add all the supplements and such to help alleviate the joint pain. I also use a chiropractor, massage therapist and reflexologist to help. And it has. I can often go 2 to 3 months before having to get my break-through meds refilled.
I cannot take the monavie or noni juice or any of those things because of my kidney disease.

*25

*oh my - about 16 and insulin.

*13

*14 tablets a day that's not including the liquid medication.

*Used to take 10, but got off them and do it all herbal now feel great!

*26

*4 on a good day, mainly supplements. On a flare day can be 10+. Used to be much more but I am finding most meds make me worse so prefer to go down the supplement route.

*on good days about 15, I think I should rattle when I walk!

*12

*Usually between 9 and 11.

*Am I the only one that pain meds don't help my pain? I take zero a day because nothing helps the pain but rest. I do take an occasional Atavan when my sleep issues are interfering with my functioning.

*15 a day plus painkillers, vit pills, inhalers and a glass of CherryActive.
02 May at 19:22 · · Flag.Debbie Deboo about 16 not including supplements. Painkillers (two types), ropinirole, thyroxine, antihistamine, melatonin.

*I take 22 a day!

*About 14 god that is scary.

*Not too many, but do have a patch for pain relief.

*15 plus or minus a few, additional pain meds, if necessary.

*Between 12 and 19 and a constant patch, occasional hay fever tablet's and inhalers. think that's it.

*I take 16 a day. 9 in the morning and 7 at night.

*11

*wow I feel very blessed right now, lots of you must rattle everyday as you have to take so many meds. I take between 11 and 15 pending on how much pain I am in.

*I have yet to find a pill that helps with the pain!! I am trying to learn to pace myself, if I overdo one day(a good day) then I pay for it by having to have bed rest for a couple of days later. Fibro sucks, it has taken away so much from me.
But on the bright side, I have met so many people that also have it that I have made life long friends!

*Around 20 depending on how bad I am- that includes Thyroxine and supplements. Was on a lot more but cut down.

*14 most days can be more if really bad day.

*Your situation sounds more like mine than the others I read here. Pain meds do not help my fibro pain. And yes Fibro sucks.

*Zero!

*Minimum of 2 on a good day and 18 on a day 1 as allergic to most of them.

*20, if I remember to take them all :S Funnily enough, I never forget the painkillers though!

*23 a day plus morphine patches

*Now about 34

*Oops forgot my vitamins so the total is about 40

*Supplements, plenty. Other, zero!

*Thirty one - Twelve of them supplements.

*Zero. Five years now all natural! Except for the occasional ibuprofen when I really need something!

*About 20 but have bu-trans patch too, also Bipolar.

*44 and feel like every one bruises my throat. And seems like more get added every time I go to doctors.

*About 10 depends on symptoms.

*On average 21, at the minute for all my problems.

*24-30, depending how much pain I am in on any given day, but I also have osteoarthritis as well as fibro, and panic attacks so the 24 cover everything.

*10

*42 including probiotics, vitamins, allergy medicines, without counting migraines and osteoporosis! I wouldn't give up any--they make a difference.

*1 amitriptyline at night. Sometimes 3 diclofenac sometimes 8 paracetamol.

*When I had insurance and could afford my medication: 30mg Cymbalta 2x, 12.5mg ambien, muscle relaxants (cant remember name) 3 to 4x, multi-vitamin, calcium, vitamin D. So, up to 10. not counting the pain killers.

*I can take up to 22

*I forgot the allergy pill & the prn inhaler. And the extra antihistamine

*For fibro? 0 - 1 lortab if the pain is bad. But it gives me migraines so I seldom take those. 0-2 aleve when I dont feel like taking a lortab.

*14 a day now but my highest was 23 a day.

*About 15 including pregabalin,diclofenac and my pain patch ooh and my migraine ones when needed! plus all the antibiotics I'm on lately! and vitamins! I should also rattle.

* currently only take 4, but am looking for an herbal alternative! Any ideas? I have FM and SLE

*I also stopped using meds as it didn't help at all. I just rest whenever I can and take it easy. I just try coping with the pain.

*None

*Between 10 and 16, god isn't that awful!

*16 at least.

*Can't do the maths!

*none

*5, plus 3 inhalers and a nasal spray.

*19 on most days, if I am having a really bad day I have been known to take another 3

*14

*It's interesting reading all the different drugs people have tried. My Doctor hasn't tried even half of them on me yet, so maybe I should have more hope and take a list to my Doc! I've not even heard of pain patches before. Thank you for sharing.

*between 10 & 15 plus inhaler

*19

*About 30.

*only 5 prescription meds daily, but then there's the over the counter stuff to counteract the effects of those meds. then there's the pain killers. I'm too scared to add them up.

*only 8 1/2 and lots of horse tablet sized supplements. I do have Ankylosing Spondylitis too though. Not on any painkillers as such! I found that moving to a part of the world with almost no humidity made me TONS better. Good job because now I have to pay for my meds I can only just about afford them here.

*2 unless headache or severe body aches

*Oh yes forgot my vitamins so 5

*5 meds but some are prn. the rest are supplements. What does it matter really.

*Way too many. A lot are vitamins and natural stuff.

*2 on a good day, 16 on a bad. I try to use heated wheat bags instead of painkillers when I can- find it helps for back and leg pain.

*14-18 depending on how much pain I am in and if I have a migraine. I do have some other health issues though.

*11

*8