Do you get a lot of migraines?

*Never

*Absolutely!

*My sister does but not me I'm happy I don't.

*Yep

*Every so often, yes, and when I get one, it knocks me off my feet.

*All the time.

*Oh my goodness yes! Migraines were my first symptoms.

*Yes, not as many now my GP put me on anti epilepsy medication.

*Too many.

*Almost every day.

*I used to, but haven't had a single one since I had a hysterectomy, and I only developed Fibromyalgia after the surgery. I absolutely believe it is related to hormone levels or something.

*Two to three times a week, so too many plus daily headaches.

*Yes everyday.

*Oh yes they last for day's.

*Yes. It's gotten a lot better since I went on 100mg of Topamax daily. However I get them if I get a sinus headache and don't take care of it quickly enough, if I let me blood sugar stay low for too long and if I have an asthma attack, I'm a mess!

*Once or twice a month for a few days at a time.

*Oh yes. At one point I had a migraine constantly for over a year, numbed by strong pain relief but never gone. I am convinced mine is linked in to a dural tap I suffered during labour in 2002, infact I am convinced the Fibro is caused by this too.
For me medication would work for so long then stop.
One in particular (anti epilepsy one, sorry Fibro fog can't recall name at the moment) worked well then stopped working after 6 months and after a years break GP thought they would try it again and I reacted so badly I thought I was going to die.
Migraines are what finish me off Fibro wise. the rest although bloody hard to do I can battle through. Migraines I can't as I throw up to the point of collapse.

*Heck Yes!

*No migraines but daily headaches which are really bothering me in the evenings when I try to relax.

*Luckily, haven't gotten any recently (I knocked wood!) But before I lost my job, when I pushed my body harder then I do now, I got them almost weekly.

*Yes! They are stress related according to my neurologist. Stress = Pain, go figure!

*Remember the name now topiramite.

*Yes.

*No I don't.

*Yes take zomig for it and they really help, been ill for 10 years but migraines have started in past 2yrs. Have to avoid the sun, heat, stress and alcohol.

*Used to, I'd literally collapse and black out with them, thankfully now after changing my diet I only get them rarely and that's if I over do it too many times in a row without proper resting and eating .

*Yes, a couple of times through out the month, more around I am due a period is the worst time.

*Bloody hell more than my fair share I think.

*Every day for last 24 years.

*Constant dull headache and, yeah, migraines about once a month. Especially with extreme weather changes (gotta love living in Wisconsin).
Topiramate helps keep me from having too many and, when I do get them, Relpax usually stops them from getting too bad. Before Lyrica and Savella were helping with the Fibro symptoms, the migraines were out of control even with the medication.

*Yes I do. Sometimes it is sinus, when my throat is sore and sometimes it is muscular, when the pain goes up the back of my neck into my head. If it is sinus I take diphenhydramine.
I also take it at night when I can't sleep. (Tip: diphenhydramine is the generic name for Benadryl, which is what is in Tylenol PM, but if you buy the generic you can buy it at the dollar store) If it is muscular I take butalbitol(not sure if I spelled that right), prescribed by my Dr.

*Loads.

*Used to have them constant but thankfully not so much now just get them every so often.

*No thank goodness.

*I did a lot until I was pregnant with my first child, then they seemed to go away. I now get one every once in a while. The only thing that works for me is Excedrin Migraine.

*I got two or three a week for years - then I found out I was chemically sensitive. I was fortunate enough to be able to move away from all the pollution to the coast and within two years they had stopped.
As long as I'm not exposed to fumes eg smoke, fuel, perfumes etc. I rarely get them any more. That was such a relief as they started when I was aged about 7 in 1950.

*Sometimes several a day and a day never goes by without one.

*He'll yes. Constant daily headaches in varying degrees and Migraines from Hell that knock off my feet for a day to a week usually with a flare up.
But have found being on LYRICA has made a difference. Daily headaches a bit more bearable.

*No, but I get lots of headaches and I get the visual disturbance from migraines without the headache.

*No I can honestly say that my head is the only place that doesn't usually hurt.

*Yes never used to headaches like this have to stay in bed all day makes me feel really ill.

*All the time. they get worse when I'm having to take a lot of painkillers too.

*I get headaches on a daily basis but they're not all migraines.

*Not really, ever now and then have a bad headache but, not often, the one thing I need is relaxation and knowing how to feel that and going to sleep and feeling rested. Never have those two things.

*No I have never had one, but I do suffer with tension headaches, for the lady who couldn't remember the anti epileptic medication could it be Gabapentin?
I was put on that and I had such an extreme reaction (took my Fibro symptoms and magnified them to a point I felt I would die) that I still haven't recovered from it completely and it's been almost a year!


*Loads although less since going on the amitriptyline.

*I had 1 everyday for a week every month until my doctor gave me the depo injection don't get them now which is great.

*Yes I do.

*Daily headaches are not migraines, but can be very bad and can be caused by medication. Sinus headaches are usually migraines.
Migraines usually come with the Fibro and many FM people, especially women have them. Hormones and menopause can make them worse.

*Oh yes.

*Yes

*Yes I've even got anti- sickness tablets for them as well.

*Yes I do. I have been getting them since I was 7-8 years old.

*Yes and if I don't catch it quickly I end up really ill. gentle hugs everyone.

*Not as many since I started taking Topamax for them.

*Yes along with other headache types.

*Used to have them weekly and they lasted about four days. Since being on gaberpentin for the last three months, I have had one.
It was as bad as previous ones with the feeling that I had been hit with a cricket bat down the left side of my face and head but it only took one day of paracetamol and codeine to get it under control.

*Yes lot's of them.

*Only since my 1st Stroke which was 5 years after diagnosis.

*I sure do.

*UGH! I was diagnosed with chronic daily migraines, not fun at all! Anyone have a cure or solution?

*Thankfully no, but I do have chronic daily headaches due to my Fibro and am on Topamax, but when I get them, I get them like a typical migraine that can last me a couple of days.

*Yes. I think it has something to do with the medications I am on. They get really bad when I have any kind of change in medication.

*Loads! Usually brought on by exhaustion, stress or lights.

*Yes - have a big one now.

*Yes, I have anti sickness tablets too! Make me feel awful, get them about twice a month. Sometimes more often, have bad flare up at minute so taken meds to keep stable.

*I use to do when I was a teenager, but I do permanently have headaches, worse when I'm stressed, like all the time, with a ASD child, and Flbro (sorry about the spelling.)

*Used to, got a lot of tension headaches that went into a migraine as well, however, I don't get half as many now due to being put on propranolol (40mg 3 times daily) and fortnightly full body aromatherapy massages. Its worth a try!

*I used to get them only occasionally, but lately I've been getting them more and more often. I suspect they're actually tension headaches. My mum started getting tension headaches constantly just before her Fibro went full-blown.

*All the time! A lot of them seem to be hormone related.

*YES! I switched to no hormones added" milk, so not as many migraines as I used to. Massaging the head and scalp, along with Excedrine seems to be my only relief.

*Last year I lived with migraines almost constantly for about 7 months. I was horrible.

*Yep, right in middle of forehead.

*I go to a headache specialist who has been very helpful. They decreased when I was put on Topamx. I'm now off it after a year on it.
Hopefully they won't return as often as they did. I sometimes got them 3 or 4 times a week, and couldn't function at all.

*Too many.

*OMG Yes!

*Last weekend 72 hours. First one in about 8 months. I just sleep only thing that helps.

*Have one now.

*About 1 or 2 per week.

*But the funny thing is That was the beginning of my illness 3 and 4 a week, nothing would help except a pain shot. But now I can take 2 excedren migraine and it takes the pain away!

*Used to, but strangely, when menopause hit, the migraines decreased, and fatigue and other pains increased.

*Sure do.

*Yes. used to get so many that I would run out of medication.

*I HATE migraines, on relpax medication to get rid of them, but I get them bad enough that they trigger my asthma attacks. To the point I am totally helpless and thankful that I have never been alone when they happen (stopped breathing twice) and I almost always wake up with them if the house is too hot/stuffy.
I also found out that mozzarella cheese has a chemical in it that aggravates migraines and once I stopped eating it so much they decreased. and as long as I keep my house cool when I sleep I can be thankful when I don't wake up with one.

*Yes.

*Yes.

*Yes really bad ones.

*I do get some migraines, my biggest complaint are the tension headaches.

*Yes.

*Yes, my hearing has gone too, peace and love.

*Yes, Yes I do, severe ones last 3 days, and then the back to back ones. I feel like a pressure cooker, or a volcano, building up steam and there she blows!
Then I am all right for a while, then off we go again. does anyone else get nose bleeds after a bad migraine?

*No

*No, used to before when I was younger but no problem now.

*Anyone else suffer with their hearing. I'm not sure whether it is my hearing or the fact that I can't take in what someone has said so have to ask them to repeat it time and time again?!

Question from a member: Does anyone else find that the fibro causes their finger and toe nails hurt or am i just going nuts?

*If you're nuts, you have company. I have the same thing going on.

*I think that everything hurts on some days even your hair! so you are not nuts

*more my toe nails than fingers!

*I have to make sure my toenails don't rub on my shoes, or they ache terribly.

*Toenails hurt like crazy some days. And I'm glad Annette said even hair because my head and hair hurt quite often and it's kind of nice to know it is not just me.

*I get it to.my feet are always sore,drives me crazy!

*Yes my fingers really hurt and so do my feet, so you are not nuts

* it isn't you at all there are days that I try to tell my hubby that and he thinks I am crazy I get really bad headaches at times too which makes it worse.

*I don't have that ~ but I seem to always have swollen hands and feet - my fingers get so bad, it hurts to make a fist - anyone else?

*Yes my nails from my hands specially hurts like hell, and the fingers. Sometimes the pain is so irresistible. From all of the sudden comes the big pain.

*I have that problem. My hands and feet are always swollen. It doesn't help that I have arthritis that is getting worse by the day.

*I get the pain in my finger nails too. Not fun!

*my husband constantly wants to play with my fingernails, I keep them long when they will grow. He likes to push on & rub the tips. It is AGONIZING!! I have to asking him to stop, or take my hands back, more then once a day.
Its mostly my fingernails, but I noticed my toes are starting to bug me more. I walked around DC all day last Tuesday which I am paying for today, Thank You Fibro!!. The only thing that really hurt was the nails on my big toes. It felt like my toenails were too big for my toes.

*I get pain in hands & feet...gee I didn't know about the nails though, thought it was just me, swelling too, headaches & migraines, OH JOY, NOT!

*until you mentioned it, I didn't associate my puffy fingers with fibro. As you say, it's painful to make a fist. Today I can hide my fingernails in my palm, but two days ago they wouldn't even meet! Also, finger nail ridges seem to come and go. Anyone else got that?

*It is possible and you are not going nuts! Places you would never dream of being painful - are!

*I'm so glad I'm not the only 1, I'll feel as though they've been crushed in a vice and as for the tremors; when I wake up I'm sure that I've been doing the river dance with Michael Flattley, oh happy days umm!!

*Ohhhh I ache in my fingers so bad it is like they have spazzed out! Totally lock up!

*yes.

*yes, this is fairly common for me, especially after clipping the nails.

*I have problems with my toe nails curving under and my finger nails growing in funny and splitting. My toes hurt and are curling under and my fingers lock up.

*my toe nail have to be cut a specific way other wise they hurt 24 hours a day! weird huh?

*I get tremors. Drives me crazy.

*even my hair hurts

*not weird at all. my nails break sometimes close to the skin and if I'm not careful I cut too close to the skin (without cutting the skin at all). when that happens, the tips of my fingers feel like they're going to bleed! my fingers and toes also swell and my feet especially feel like I'm walking on sausages but it hurts really bad to walk!

*Nope, your not nuts!

*I get tremors in my right hand/wrist if I am too tired.

*omg my toe nails hurt so much!! and now that you mention it my fingernails do to!

*yes & I'm wondering if anyone else has faceted nails in that there are lines down mine so they look like long narrow panels?
I'm sure I read about it being to do with fibro - maybe some sort of deficiency? Anyone else have that or am I going mad?!

*I can't believe you keep coming up with all my symptoms, it's murder when nail polish needs taken off.

*I am so glad to hear I am not going nuts after all! Thank you for asking this question for me, I also have days when hair and scalp hurt,my hands and feet also swell and walking is agony when I get out of bed I must look like a demented budgie!
Thank you all for showing me I am NOT alone in this, very gentle hugs to you all.

*It was only last week I was diagnosed, though I'd suspected for some time. Reading all your comments and ailments, I now realise I've had the condition for most of my life, and I'm now nearing 65! It makes it easier to bear, knowing that I'm not imagining all the pain, tingling, numbness, fatigue, forgetfulness, butterfingers etc. that previously had no explanation!

*Yes, happens to me,my big toe nails keep falling off, they go black, then the whole nail comes off, attending podiatry clinic for it.

*I don't have issues with any of my nails, but like a few people have mentioned, sometimes my hair does hurt. I'm not sure if it's just sensitive spots on the scalp or if its actually the hair. All I know is that it's not pleasant.

*no your not going nuts, but until now I thought I was going round the bend as I didn't think anybody else suffered from finger/toe nails pain,at the moment mine are agony I've got to use a pen to type this and even this hurts.

*have that problem too.

*Oh, I remember the days ,when didn't want to walk or use hands for fear of making them hurt worse. But the Fucoidan in the LIMU has changed all that.
I had planters fisciatis in the right heal, not any more the inflammation is gone. Along with the inflammation in my hands & fingers. Also have Chrons besides Fibromyalgia, Limu has reduced my gut so I am off meds & ate cucumbers & onions last summer; can't wait for this one!

*For me the nails themselves don't hurt (so far) but I get the ridges and panels in my nails and the swelling of my hands and feet, as well as constantly waking up with terrible pins and needles in my hands and forearms

*my fingers hurt so much especially when on pc work as brought me a keyboard to help it's got a much softer keyboard

*your not going nuts mine hurt as well

*My hands hurt when I cry or if if I have a sharp pain somewhere else like cramp or cystitis. They just hurt while I have the sharp pain. Does anyone have cystitis a lot? I seem to get a few secondary conditions like cold sores, cystitis etc. When I am run down.

*No you are not going nuts, mine do too

*Sometimes everything hurts or so it seems. No you aren't nuts. The nuts are the doctors that used to tell us that they didn't believe in Fibro & try to make us think it was all in our heads!